CAPE CLL Initiative

 
CAPE CLL Logo

Overview of CAPE

The Cancer Advocacy & Patient Education (CAPE) initiative aims to create a web-based library of best-practice information that providers in the CLL cancer space can give to their patients and caregivers at each point of interaction. This program is supported by funding from Pharmacyclics, an AbbVie Company and Janssen Biotech, Inc.

Our Mission

To improve patient experience from cancer diagnosis through the cancer trajectory with personalized education

Our Vision

Engage, inform, and empower newly diagnosed cancer patients utilizing a predetermined quality-of-life model to reduce distress and improve patient experience from diagnosis through the cancer trajectory.
CAPE Platform Login
Register on the CAPE Platform

Related Links

Navigating Chronic Lymphocytic Leukemia (CLL): The Critical Importance of the First 90 Days
https://www.jhoponline.com/special-issues/navigating-chronic-lymphocytic-leukemia-cll-the-critical-importance-of-the-first-90-days

Navigating Chronic Lymphocytic Leukemia: The Critical Importance of the First 90 Days. Navigation Strategies to Improve Care
https://www.aonnonline.org/navigation-tools/4879-navigating-chronic-lymphocytic-leukemia-the-critical-importance-of-the-first-90-days

Chronic Lymphocytic Leukemia (CLL) Publications for Patients, Caregivers, Healthcare Providers
https://www.aonnonline.org/images/resources/navigation_tools/CLL_FSAC_One_Pager.pdf

Physical, Psychological, Social, and Spiritual Well-Being of Patients with Chronic Lymphocytic Leukemia and Their Caregivers: A Scoping Review
https://www.jons-online.com/issues/2021/june-2021-vol-12-no-6/3811-physical-psychological-social-and-spiritual-well-being-of-patients-with-chronic-lymphocytic-leukemia-and-their-caregivers-a-scoping-review

 
Association of Community Cancer Centers (ACCC)
Cancer Support Community
Janssen Oncology
Leukemia & Lymphoma Society
Patient Empowerment Network
Pharmacyclics

    CAPE CLL Videos

    Overview of Chronic Lymphocytic Leukemia (CLL)

    Overview of Chronic Lymphocytic Leukemia (CLL)

    By Chelsea Passwater, DNP, RN, AGCNS-BC, OCN
    Watch as our CLL clinical advisor dives deeper into defining CLL, the clinical staging systems developed for this disease, and the role navigators play in the patient’s treatment journey.
    Watch now
    CLL: Watch and Wait Period

    CLL: Watch and Wait Period

    By Nikki Barkett, BSN, RN, OCN
    Listen in as our CLL clinical advisor examines the “Watch and Wait” period in CLL and impact navigation can have during this period.
    Watch now
    The Role of Genetics in CLL

    The Role of Genetics in CLL

    By Chelsea Passwater, DNP, RN, AGCNS-BC, OCN
    A look at understanding the complexities of mutations and cytogenetics in CLL, the role genetics plays in prognosis, and how navigators can educate their patients and caregivers.
    Watch now
    Prognostics & Predictive Models in CLL

    Prognostics & Predictive Models in CLL

    By Nikki Barkett, BSN, RN, OCN
    An inspection of prognostic and predictive tools in CLL, risk categories, and impact on the patient’s treatment plan.
    Watch now
    Patient Criteria for Treatment in CLL

    Patient Criteria for Treatment in CLL

    By Chelsea Passwater, DNP, RN, AGCNS-BC, OCN
    Our CLL clinical advisor examines indications for treatment in CLL for both symptomatic patients and asymptomatic patients as well as the navigator’s touchpoints during this phase.
    Watch now
    CLL Treatment Journey

    CLL Treatment Journey

    By Nikki Barkett, BSN, RN, OCN
    Our CLL clinical advisor dives into the different targeted therapies for CLL patients including oral oncolytics and the impact navigation has on adherence to treatment and the multidisciplinary approach to care.
    Watch now
    Treatment Complications & Adherence Promotion Strategies

    Treatment Complications & Adherence Promotion Strategies

    By Chelsea Passwater, DNP, RN, AGCNS-BC, OCN
    Take a look into possible treatment complications for CLL patients, barriers to adherence, and navigation strategies to improve compliance to treatment.
    Watch now
    The Navigator’s Influence on Care Coordination for the CLL Patient

    The Navigator’s Influence on Care Coordination for the CLL Patient

    By Nikki Barkett, BSN, RN, OCN
    Watch as we examine the navigator’s influence on care coordination for the CLL patient with an emphasis on patient advocacy and shared decision-making.
    Watch now
    Psychosocial Impact of a CLL Diagnosis

    Psychosocial Impact of a CLL Diagnosis

    By Nikki Barkett, BSN, RN, OCN
    Explore the psychosocial effect of a CLL diagnosis including financial toxicity and quality of life and dive deeper into the navigator’s role in meeting the patient’s psychosocial needs.
    Watch now
    Caregiver Impact of a CLL Diagnosis

    Caregiver Impact of a CLL Diagnosis

    By Chelsea Passwater, DNP, RN, AGCNS-BC, OCN
    Learn about the role of caregivers in the CLL treatment journey and the challenges they face including financial concerns and caregiver burnout. We also examine compassion fatigue and burnout in the healthcare community.
    Watch now

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